NanoInformatics Knowledge Commons Curation Team: Building the Data Dictionary to Enrich Data Curation

11 Jul 2018 | Presentations | Contributor(s): Jaleesia Amos, Yuan Tian, Mervi Heiskanen

Nano WG Presentation, May 31st, 2018 Organized storing of data using informed-decision making to determine what information should be curated, when data curation is complete, and how to identify high-quality data. Purpose of NIKC structure & curation process: tell the story of...

NCI Standard CRFs

15 Mar 2014 | Teaching Materials | Contributor(s): Denise Warzel, Ann Christine Catlin, Sumudinie fernando

Working in conjunction with NCI has developed a collection of Standard Case Report Forms (CRFs) for use in developing new protocols. The project and its status are described here. The reuse of sections from standard CRFs helps to ensure that data collected in different studies is compatible and...

NCIP Hub Dashboard Tutorial

15 Apr 2014 | Teaching Materials | Contributor(s): Lisa Mahoney

This is a short "how-to" video to familiarize users with the customizable dashboard on NCIP Hub.

NCIP Hub QIN Workshop - March 3, 2015

19 Mar 2015 | Presentations | Contributor(s): Michael McLennan

Mike McLennan, director of HUBzero, presented an overview of basic NCIP Hub functionality to the QIN group on March 3, 2015. The presentation included an overview of the "hub" and HUBzero, and touched upon functionality such as projects, groups, resources and information sharing. The...

Overview on HUBzero - Building Scientific Communities Online

03 Sep 2013 | Teaching Materials | Contributor(s): Michael McLennan

This is a white paper/publication on the HUB and how one can build online communities using the HUBzero platform. See the tab on supporting documents for a video presentation.

Overview: The HUBzero Platform for Scientific Collaboration

18 Dec 2013 | Presentations | Contributor(s): Michael McLennan

This web site was created using a collaborative infrastructure called HUBzero, developed by Purdue University. HUBzero is the basis of nanoHUB.org and more than 50 other sites covering a wide range of scientific disciplines, including bio-fuels, microelectromechanical systems, cancer research,...

Patient Stories

30 Nov 2015 | Teaching Materials | Contributor(s): Diane Townsel

Beaumont’s Patient videos: is the story of five patients that have participated in clinical research or have been a part of a bio-specimen study. The videos tell the unique stories of our patients and how our Cancer Clinical Trials staff build relationships with our patients and guide them...

Performance Status Scoring : a standards portal resource

15 Mar 2014 | Teaching Materials | Contributor(s): Ann Christine Catlin, Sumudinie fernando, Denise Warzel, Angela Kummerow

The scoring scale used may depend on patient population, disease, study goals and other criteria. Many definitions of the scale scoring do not match the standard.What is Performance Status?Performance status attempts to quantify the general well-being of cancer and other patients. The score...

Por Nuestras Hijas/For Our Daughters HPV Program

24 Nov 2015 | Teaching Materials | Contributor(s): Maria E. Fernandez

The Por Nuestras Hijas/For Our Daughters HPV program is an interactive, culturally appropriate HPV education program which includes a print fotonovela and a tailored interactive multimedia intervention (TIMI). The TIMI runs on iPads and also available on the web and mobile platforms. The program...

Resources on NCIP Hub

22 Sep 2014 | Teaching Materials | Contributor(s): Lisa Mahoney

This is a presentation given as part of the NCIP Hub Webinar Series. It reviews at a high level what resources are, why and when to use them, and how to contribute.

Resources on NCIP Hub (2016)

02 Mar 2016 | Presentations | Contributor(s): Lisa Mahoney

This presentation is part of NCIP Hub's 2016 Webinar Series. It provides an overview of what resources are, when and why to use resources and how to upload resources to NCIP Hub.

Standards Portal CDEs Complete View

15 Mar 2014 | Teaching Materials | Contributor(s): Denise Warzel, Ann Christine Catlin, Sumudinie fernando

This DataView on this resource page is used to explore the Standards Portal CDEsUse the DataView provided on this resource page to navigate, browse, search, explore and download the complete set of columns for NCI common data elements standards at the Hub. These CDEs are brought to the Hub for...

Standards Portal CRFs Common Data Fields

19 Mar 2014 | Downloads | Contributor(s): Denise Warzel, Sumudinie fernando, Ann Christine Catlin

This DataView is for the Common Data Fields of the Standards Portal CRFsUse this DataView to browse, search, explore and download the essential set of columns for NCI case report form standards at the Hub. These CRFs were brought to the Hub for clarification, discussion and discovery. They were...

Standards Portal CRFs Complete View

19 Mar 2014 | Downloads | Contributor(s): Denise Warzel, Sumudinie fernando, Ann Christine Catlin

This DataView resource page is for the Standards Portal CRFsUse this DataView to browse,search, explore and download the complete set of columns for NCI case report form standards at the Hub. These CRFs were brought to the Hub for clarification, discussion and discovery. They were assembled by...

Standards Portal Vocabulary DataView

15 Mar 2014 | Teaching Materials | Contributor(s): Sherri de Coronado, Denise Warzel, Ann Christine Catlin, Sumudinie fernando

The DataView for terminology referenced/used by the CDEs and CRFs currently contained in the Standards PortalThe DataView on this resource page can be used to browse, search, explore and download the NCI concepts for vocabulary referenced by the CDEs and CRFs uploaded to the Standards Portal....

TCGA Common Data Elements

15 Mar 2014 | Teaching Materials | Contributor(s): Ann Christine Catlin, Sumudinie fernando, Denise Warzel

TCGA Common Data ElementsTCGA version 2.6 CDEs are the standard elements that were used in validation of clinical data in the TCGA 2.6 data files. The data files are available for download at the Data Matrix. This resource page at the NCIP HUB presents the CDEs for easy search and discovery....

Text Messaging and Phone Calls as Tools to Promote Healthy Behaviors among Hispanic Populations

24 Nov 2015 | Teaching Materials | Contributor(s): Laura Leticia Nervi, Barbara Damron, Maria Otero, Andrew Sussman, Dolores Guest

Title: Text Messaging and Phone Calls as Tools to Promote Healthy Behaviors among Hispanic Populations   Objectives: The primary aim of this project was to evaluate the use of text messaging and phone calls to motivate Hispanic adult males and females to increase their daily physical...

Text Messaging as a Method to Increase Oral Chemotherapy Adherence in Hispanic Cancer Populations

23 Nov 2015 | Teaching Materials | Contributor(s): Laura Leticia Nervi, Barbara Damron, Andrew Sussman, Dolores Guest

Title: Text Messaging as a Method to Increase Oral Chemotherapy Adherence in Hispanic Cancer Populations:  Patient and Provider Feasibility Surveys Objectives: The purpose of this study was to explore the feasibility of conducting an interventional study to evaluate the effectiveness of text...

The Boston Medical Center Patient Navigation Toolkit

22 Dec 2015 | Downloads

The BMC Toolkit offers case studies, tools and resources from cancer care navigation that can be applied to reduce the impact of the target disease, health disparities, and barriers to care unique to your own community. For Program Planners, Volume 1: Developing your Patient Navigation...

The history of chemical information and the materials of the future

25 Apr 2019 | Presentations | Contributor(s): Evan Hepler-Smith

Techniques, technologies, cultures, and infrastructures of information management played a central role in the development of the modern chemical sciences and the global chemicals industry since the late 19th century. Chemical databases and analytical techniques that privileged abstract,...