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SEER-CAHPS User Guide

By Lisa M. Lines1, Daniel H. Barch1, Kim Danforth1, Lisa DiMartino1, Michael T. Halpern2, Rebecca Lewis1, Joshua Michael Medel2, Diana Zabala1, Michelle A. Mollica2

1. RTI International 2. National Cancer Institute

This user guide provides researchers with a compilation of guidance and information on the SEER-CAHPS data resource.

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Version 1.0 - published on 28 Dec 2021 doi:10.17917/SNGP-FQ26 - cite this

Licensed under CC0 - Creative Commons

Description

This user guide provides researchers with a compilation of guidance and information on the SEER-CAHPS data resource, a linkage between the National Cancer Institute’s (NCI) Surveillance, Epidemiology and End Results (SEER) cancer registry data and the Centers for Medicare & Medicaid Services' (CMS) Medicare Consumer Assessment of Healthcare Providers and Systems (CAHPS®) patient surveys.

This resource, a result of collaborative effort among NCI, the SEER registries, and CMS, first became publicly available in 2016. The linkages between the different components of the SEER-CAHPS data are updated every 2-3 years, based on SEER and other data availability.

It’s important to note that the most recent data linkage was completed in 2021. It includes SEER data for individuals diagnosed with cancer in 1975-2017, CAHPS data for 1997-2019, and Medicare claims data for Fee-for-Service beneficiaries for 1999-2019. This guide reflects the 2021 linkage and data elements, although some portions pertain to earlier linkages. Updates will occur with future linkages. The most up-to-date guide can be found on the SEER-CAHPS website here: https://healthcaredelivery.cancer.gov/seer-cahps/researchers/guidance.html.

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